Story of CHD Kids
The warrior fights against congenital heart disease - Circle
Circle, my daughter, celebrates her first birthday on June 21, 2022! On March 5, 2021, Circle was still in my womb. This was the first time for my husband and I entered into Hong Kong Children's Hospital. We went there with heavy heart and aimed to seeking help from Dr Barnabe Antonio Rocha and Dr Chow Pak Cheong, the saviours of my daughter’s life. Dr Chow told us that Circle was suffering from Transposition of the Great Arteries (TGA), in which the two major blood vessels of the heart were misaligned. If it was left untreated, the two blood vessels would be reversed and the heart would not be able to carry oxygenated blood to the rest of the body, possibly lead to death. This...
Details
The Value of Life, Walking Against the Wind - Damian & Lucy
Damian, Lucy’s son, was born with Truncus Arteriosus. He had to have surgery when he was 10 days old. Unfortunately, he passed away when he was 13 days old. Because of the care that Lucy’s family received in the hospital, they would like to have some positive action, so they organised a fundraising campaign for CHF. What was the biggest challenge you faced as parents of a child with congenital heart disease? The stress and uncertainty were the most difficult to deal with. Our diagnosis was not certain during pregnancy; and this left us in a state of constant worry. Then, following Damian’s birth, once we confirmed the diagnosis of Truncus Arteriosus, we felt...
Details
The Value of Life, Walking Against the Wind - Damian & Lucy
Damian, Lucy’s son, was born with Truncus Arteriosus. He had to have surgery when he was 10 days old. Unfortunately, he passed away when he was 13 days old. Because of the care that Lucy’s family received in the hospital, they would like to have some positive action, so they organised a fundraising campaign for CHF. What was the biggest challenge you faced as parents of a child with congenital heart disease? The stress and uncertainty were the most difficult to deal with. Our diagnosis was not certain during pregnancy; and this left us in a state of constant worry. Then, following Damian’s birth, once we confirmed the diagnosis of Truncus Arteriosus, we felt...
Details
The Value of Life, Walking Against the Wind - Damian & Lucy
Damian, Lucy’s son, was born with Truncus Arteriosus. He had to have surgery when he was 10 days old. Unfortunately, he passed away when he was 13 days old. Because of the care that Lucy’s family received in the hospital, they would like to have some positive action, so they organised a fundraising campaign for CHF. What was the biggest challenge you faced as parents of a child with congenital heart disease? The stress and uncertainty were the most difficult to deal with. Our diagnosis was not certain during pregnancy; and this left us in a state of constant worry. Then, following Damian’s birth, once we confirmed the diagnosis of Truncus Arteriosus, we felt...
Details
A Journal of Soaring Against the Wind - Janice
‘Mother Eagle teaches Baby Eagle to fly. Baby Eagle is very scared; she always flaps her wings simultaneously. Mother Eagle sees it and drives her away from the nest. Baby Eagle falls off from a cliff. She is very afraid, seeing the rocks are right in front of him. She instinctively opens her wings and flaps as hard as she can. She starts to flap her wings and slowly gets her feelings. From stopping falling, to slowly soaring….’ When Janice was one month old, she was diagnosed with Congenital Heart Disease. Due to only one of her two ventricles being able to function normally and the transposition of her great arteries and pulmonary arteries, she is more susceptible...
Details