Children Heart Disease

The Value of Life, Walking Against the Wind - Damian & Lucy

Damian, Lucy’s son, was born with Truncus Arteriosus. He had to have surgery when he was 10 days old. Unfortunately, he passed away when he was 13 days old. Because of the care that Lucy’s family received in the hospital, they would like to have some positive action, so they organised a fundraising campaign for CHF. What was the biggest challenge you faced as parents of a child with congenital heart disease? The stress and uncertainty were the most difficult to deal with. Our diagnosis was not certain during pregnancy; and this left us in a state of constant worry. Then, following Damian’s birth, once we confirmed the diagnosis of Truncus Arteriosus, we felt...

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